← Return to Pheochromocytoma: Anyone being treated for an adrenal mass?

Discussion
Comment receiving replies
@jeanern01

@janfam - the 24 hr test was one I believe they told me only Mayo does— it was sent to Mayo Rochester and it showed the percentage of it being cancer vs noncancer, or a pheochromocytoma- it showed all kinds of hormone levels— it was a good test- but in the long run I don’t know how helpful it was in diagnosing- because I still don’t have a diagnosis. My mass is much smaller than yours- on 1.8 and has been that size for a few years- so it’s much more stable than yours, and I just found out this week that the adrenal board reviewed my case here at Mayo and they recommend it being removed because it’s a pretty simple procedure with little risk. I would just recommend finding a surgeon who removes adrenal masses regularly- try one of the university hospitals near you, or bigger centers. But I would think growing that fast most are going to say remove it. Take care!

Jump to this post


Replies to "@janfam - the 24 hr test was one I believe they told me only Mayo does—..."

Thank you! I am having surgery here at The University of Miami for May 17. I think if mine was your size and that stable I would not do surgery. Are your hormone levels normal?