← Return to Pheochromocytoma: Anyone being treated for an adrenal mass?

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@janfam

I am in Florida and my adrenal mass grew from 3cm to 4cm in 8 months. They are recommending taking it out. The hormones are normal and they cannot be sure with the CAT scan. They do not do the 24 hour urine here. I am scheduled for surgery however I am wondering if I should have that test and where I can go for it here in Florida. I am very far from Mayo clinic and live in Boynton Beach.

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Replies to "I am in Florida and my adrenal mass grew from 3cm to 4cm in 8 months...."

@janfam - the 24 hr test was one I believe they told me only Mayo does— it was sent to Mayo Rochester and it showed the percentage of it being cancer vs noncancer, or a pheochromocytoma- it showed all kinds of hormone levels— it was a good test- but in the long run I don’t know how helpful it was in diagnosing- because I still don’t have a diagnosis. My mass is much smaller than yours- on 1.8 and has been that size for a few years- so it’s much more stable than yours, and I just found out this week that the adrenal board reviewed my case here at Mayo and they recommend it being removed because it’s a pretty simple procedure with little risk. I would just recommend finding a surgeon who removes adrenal masses regularly- try one of the university hospitals near you, or bigger centers. But I would think growing that fast most are going to say remove it. Take care!