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Good morning Ray. I suppose I’ve been doing the same thing mainly because it takes a lot of energy to get ready to go to an appointment and also the expense involved for Transportation. I have a nice lady that picks me up and takes me to my appointments. She has a transport chair which I require. One trip will cost me about $65 not including the co-pay at the doctors office. I have arranged transportation to the appointment at Shands in September and that trip will cost me $300 round-trip. (2 1/2 hours away) I sold my car about two years ago because it sat in the garage for two years and had repeated dead batteries. My blurred vision, and nystagmus was the reason I stopped driving. It’s been quite the adjustment since my husband passed away in 2014. Now 68 and struggling on my own.
I am so glad I found this support group to be able to discuss our common
symptoms and methods. The three PPPs, pills, patches and potions, only do so much to relieve pain. Sandra.
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Hello again, Sandra
My apologies: I'll need to keep this short as work is whispering, "Don't forget about me!" LOL Your costs are far more demanding than mine, but even I had cut way, way back on those expenses, while vital, could possibly be avoided. Last year I had to stop going to PT because the copays were mounting. I felt I was getting something out of the PT, but I knew I had to find a cost-free alternative. Since then, I've been doing an online PT program (minimal cost), from which I believe I'm still benefiting. Yes, this support group is fantastic! It has certainly helped me, in one Big Way and that's letting me know I'm not alone!
Ray (@ray666)