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"Rubbery" Legs?

Neuropathy | Last Active: Jun 1, 2023 | Replies (107)

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@ray666

Good morning, ssjohns (@ssjohns)

Going from one doctor to another can certainly be frustrating. It has been for me. And still is, if a little less so: a few months ago I decided upon a program I'm calling (my own made-up word!) "de-doctorizing." The idea behind de-doctorizing is –– insofar as I can, and making exceptions for emergencies –– not allowing my calendar to get all gunked up with doctors' appointments. If possible, I'm trying to limit those appointments to never more than two-a-month (i.e., Week #1 with an appointment, Week #2 without an appointment, and so on = 4 weeks, or one un-gunked month). So far I've been pretty good at de-doctorizing. Yesterday, I met with my neurosurgeon (which I'll tell about in a separate post); yesterday's appointment was only my second doctor's appointment in April, so it looks like I'll be able to declare April a de-doctorizing success. LOL!

Ray (@ray666)

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Replies to "Good morning, ssjohns (@ssjohns) Going from one doctor to another can certainly be frustrating. It has..."

Good morning Ray. I suppose I’ve been doing the same thing mainly because it takes a lot of energy to get ready to go to an appointment and also the expense involved for Transportation. I have a nice lady that picks me up and takes me to my appointments. She has a transport chair which I require. One trip will cost me about $65 not including the co-pay at the doctors office. I have arranged transportation to the appointment at Shands in September and that trip will cost me $300 round-trip. (2 1/2 hours away) I sold my car about two years ago because it sat in the garage for two years and had repeated dead batteries. My blurred vision, and nystagmus was the reason I stopped driving. It’s been quite the adjustment since my husband passed away in 2014. Now 68 and struggling on my own.

I am so glad I found this support group to be able to discuss our common
symptoms and methods. The three PPPs, pills, patches and potions, only do so much to relieve pain. Sandra.