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Hopeless and Discouraged, again! Seeking any advice.
Neuropathy | Last Active: May 23, 2023 | Replies (55)Comment receiving replies
I concur and completely understand your frustration. After visiting Dr. after Dr. and having tests after tests, no one was able to tell me what was wrong. I went to one neurologist, who said to me, “what are you doing here“ I proceeded to tell him my story, my symptoms, etc., and told him that I had been to Mayo clinic three times and could not be diagnosed. He responded in a nasty tone, “I find that hard to believe.“ Needless to say, I left in tears, and when I got home, I called the office administrator for the practice and told them about the encounter and that I wanted to be transferred to a different neurologist in the practice. Where is the compassion? Where is the understanding? Where is the bedside manner? It was this new neurologist that agreed to do the EMG on me and I was diagnosed that day. There is no excuse for these doctors to treat their patients with such distain and lack of empathy. I feel your pain and anxiety.
Replies to "I concur and completely understand your frustration. After visiting Dr. after Dr. and having tests after..."
I am truly SO sorry you had to deal with that type of behavior you describe. It IS so devastating and depressing to deal with such behavior, especially when you are already feeling frustrated, angry, etc. I had a situation where it took almost ten years from the time I started having a condition that was extremely painful - and invisible to others - saw several medical/dental specialists, had multiple therapies, surgeries, etc. I worked in a hospital and yet still was not believed including by co-workers.
I am hoping you can find some true relief in your near future.
Hug received. Thank you. I am so glad I joined this group. It helps to talk about your experience and vent a little with those who completely understand.
Sandra
Most of them have very little value…the least they could do is be nice.
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Someone on here mentioned that some doctors are as frustrated as we are that they can’t give us a diagnosis, find out our cause, or give us a cure. So now I find myself a little more compassionate toward them (unless they’re extremely rude). Twice I have stated to doctors “I’m sure this is frustrating for you too”. Both times they relaxed a little and the conversation became less stressful and more positive. I want my 15 minutes with them to be productive. I hope you get the right balance for help!