"Rubbery" Legs?

When you say, "the choices left are few," that rings a bell with me. After years of trying first this therapy and then that therapy, we become minor-league experts at what the future holds and doesn't hold for us. Hardly a day goes by without some well-meaning friend phoning to say, "You should try this," or "that." These friends are indeed well-meaning, and I have to love them for their good intentions, but I can admit (here, if nowhere else) that I receive one of those calls –– as I did yesterday –– I'll feel a twinge of impatience and think, "Oh, no, not another suggestion!" What I'll say to my friend, of course, is simply, "Thank you! I'll look into this."

Since I was just diagnosed with this illness in December, I am on the search for a miracle cure and nothing else. Your experience would be extremely valuable to us newbies. I realize there is not one remedy fits all because everyone’s illness is different, but I would welcome any recommendations you have found that may work for you. There is a sock company in Canada called VOXXLIFE. These socks have a built-in technology on the foot that does help. I initially bought these at the physical therapist office, and was extremely doubtful that a sock could help. But it does. It is worth a try. These socks are not cheap, but they have a variety of styles to fit your needs. I found that I had more stability when wearing them. I call them my magic socks. Since I am a new member, I am not allowed to post a link but if you Google VOXXLIFE you will find their website. I am open to anyone’s suggestions if it improves my quality of life. Keep moving.

Thank you for your honest feedback. I am willing to try anything if it helps keep me mobile. I’m going to see my pain doctor in a couple of weeks to talk about the spinal cord stimulation trial and my gabapentin medication will be delivered this afternoon. I will try this first before I try the PREGABLIN. I thought the walkasins would be beneficial, but doesn’t look like I’ll be getting any since I live in Florida. In the meantime, I will continue to wear my “magic socks.” OK

Thanks again.

Hi, all! My PN diagnosis wasn't all that long ago. Only last fall, although I've been accommodating my increasingly bothersome balance for the past couple of years. That diagnosis last fall was the result of my one and only EMG test; until then, my doctors had been doing most best-guessing. The doctor last fall was the first to say, "Ray, you definitely have peripheral neuropathy." Until that moment, I had no words to attach to my condition. As far as "magic socks" go, I too wear "magic socks," mine (texturized for stimulation) are by a company called Naboso. Do they help? I think so. Or I'd like to think so. They do feel good, however, that much I do know! LOL

Well, we have that in common Ray. All my doctors could do is shake their head and send me to another doctor, send me for more bloodwork or physical therapy. I switched to a new Neurologist and he did an EMG, at my request, and the needle conduction study. Mystery solved and it only took eight years. Now he wants to send me to Shands (UF Health) in Gainesville FL. Impossible to get an appointment there until September. At this point I really don’t know what more can be done and I really don’t want to have to pay somebody to take me to the doctor 2 1/2 hours away just to hear him say “ well, there’s nothing we can do.” I will keep the appointment and decide later if I’ll cancel.

I will be sure to look up your magic socks and research them.

Thanks for sharing.

I checked the Dr. Leonard catalog and the rollators that allow you to stand up straight cost between $159 and $199. Check it out!

I have one in my house and one in my garage and they are very helpful, insurance will pay. Just get your doctor to write a script. Co-pay should be a lot less.

WOW! I did not know Medicare would pay. Oh, well, my loss. But thank you for passing that information along so that others might benefit. Yvie

Hi Debbie. I’m interested in your comment on your aching arms. I have neuropathy in both hands and feet and I am unable to walk without the walker. My daughter keeps telling me that I am leaning on my walker too much and this is causing the ache in my arms. It truly is disabling because when I am using the walker to shop with I just want to sit down on it or go home! I think it is referred pain from the neuropathy in my hands and that my daughter is wrong! My physiotherapist raised the arms up a little and that seems to have helped. Maybe this could work for you. Please keep in touch if anything changes for the better with your arms.

I am 77 and have had PN for 13 years. During the last six months tingling has moved from toes to calves. Also, my quads feel sore after walking and getting up in the morning. There is some it band pain. Legs feel weak. Back is also sore from previous herniated lumbar disc. I am afraid to stop walking despite pain and weakness. No can yet. I walk everyday a few miles. Do you think my quad pain is overuse and not PN. Do you feel exercise slows the progression. I fear losing mobility while trying to take care of my wife with early dementia