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To all with microscopic colitis please be patient. I had this experience and Busesonide. It truly is the answer. It works differently on different people. You need to take two or three every morning for at least two weeks or maybe more. Then take it for a month then slowly taper off if having success. Problem is the constipation side affect needs citrucel to counter react. If you play with the dosage for a month or so then it heals the colon. If watery stools are there in the night then in the morning take the Busesonide. More than one. Do that until stools are firmer. As soon as constipation starts take less and start citrucel. It eventually heals. But it does take patience and persistence. I now take citrucel daily and it helps a lot.
Replies to "To all with microscopic colitis please be patient. I had this experience and Busesonide. It truly..."
@kjane322
Do you take Budesonide all the time or when you have a flare up? I have had MC since 2022. I was only initially prescribed Budesonide and weaned and my GI only recommends Budesonide when I have a flare up, I was so thankful to have the Budesonide but because it is a steroid I would not want to take it all the time and my GI doesn’t recommend that Budesonide be taken all the time. Pepto Bismol or Imodium are his recommendations unless they don’t work….. then he says to take Budesonide as directed 3 each morning and wean as you stop having diarrhea. It’s been 3 years and I can’t gain any weight. I lost 50 pounds in 7 months. I eat The Microscopic Colitis foods recommended by Wayne Perskys research and that has improved my MC flare ups….. it is a huge change but I am better ….I just can’t gain weight….plus I am more often than not tired. It was a while before I found the Microscopic Colitis Foundation/ Wayne Persky. I didn’t want to eat as he says we MC’ers should and I didnt. I started having horrible reflux in 2024. Upper endoscopy was only a small hiatal hernia. The reflux turned to vomiting. I then knew I had to eat like Wayne Persky says. The vomiting has almost stopped!! I do fear the feeling of a burp fearing it will be vomit. 4 months now only 3 vomits. I had become daily and I lost more weight. I an skin & bones….age 66.
Teresa Dean
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Amen. But I would let my doc play with dosage of Budesonide. It was a wonder drug for me
This was my Budesonide regime
9 mg/day for 8 weeks, and then
6 mg for 2 weeks, then
3 mg for 2 weeks, then
off the medication