Results came back for second elastase test it was normal, fecal fat normal, gallbladder hida normal. I am feeling very lost as to what's causing these issues. I did a full 180 on my diet incorporating healthy grains decreasing fats and sugar. Increased fiber intake. Stools are still lighter in color than usual but aren't yellow as they were for weeks. I started using florestor this week as well. I have had a few normal stools, at least normal to how I remember them being last year before all this began.

I met with gastro this month and their diagnosis is a brain gut disconnect where I am still receiving pain signals though the infection is gone. It's a possibility that I am not dismissing entirely but I still haven't gotten a real answer on iron deposition issues over my liver and pancreas. I also noticed on another scan for a separate issue that they noted a splenule, I am reading there are some complications that can come from these and they can be mistaken for neuroendocrine tumors or vice versa.

Not entirely sure how I feel about this brain gut disconnect as my symptoms under the rib were mild in March where it was a feeling of having something under my rib which then flared into intense pain the beginning of April throbbing, stabbing in front and back of ribs then changed into itching crawling and shooting nerve pains across my rib and up my back. This went on for two weeks and now I am again back to the feeling of having something under my rib, and my back is inflamed and only on the left side mid back and shoulder blade.

I am seeing massage therapists for my back and a physical therapist too but neither have helped yet. There is a small lump in between muscles in my back that may be a knot. I will try to have it checked out by my doctor.

I had an MRI done of my spine as well that showed no tumors or anything sinister in March. I will try other gastro teams to see if there is anything they see but I am beginning to lose hope here. Not sure if I will have another flare up - we shall see. It's been a really nice quiet week I am appreciating it very much.

Is there anyone on the board that has chronic pancreatitis that can describe their symptoms? Is the pancreas visibly enlarged in scans, is the pain constant, are there flares? What causes flares? What was the definitive scan or test result that warranted the diagnosis?