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Desperate for Help! Neuropathy related to cancer or hereditary?
Neuropathy | Last Active: Jul 3, 2024 | Replies (40)Comment receiving replies
OMG!!!!! I feel your pain. I hear it in your words. I was diagnosed with sensorimotor Polyneuropathy and small fiber neuropathy. I have tried everything, with really bad side affects. Just today….I went to pain management (1st time) and I was told that it looks like I’ve tried all the go to medications. What they suggested was to lose weight, exercise, get my diabetes under control. Well….my primary Dr. took me off of my diabetic meds because he said I had my A1C under control and I would love to get back to my life….walking three miles a day, chasing and teaching first graders, and driving. So now what????? I am out on disability through work but that only last a year. I’m so stressed out. I’m in extreme pain 24/7. I don’t know where to go to from here. Why won’t drs. listen instead of making us feel like it’s our fault we’re sick and in pain?
Replies to "OMG!!!!! I feel your pain. I hear it in your words. I was diagnosed with sensorimotor..."
Try the Red Light Therapy on Walmart.com. Have tons of devices to choose from. Have been using for 10 days and is helping me with pain, numbness, and blood flow.
I wanted a cure from the pain, not opioids. A study I found from the Cleveland Clinic suggests 300 mg of CoQ10 and 20 mg of PQQ daily. Although I still have neuropathy, the pain is gone. Before this it felt like I was walking on hot coals. It’s not overnight, but th pain in my hands and a lot of the pain in my feet was gone after about 3 months. I’ve been taking these for a year. My feet are still mostly numb, but they are pain free.
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See if your neurologist will try Tegretol, which is a different seizure medicine than Gabapentin and Lyrica. It worked much better for me.