← Return to Radiation side effects with H&N cancer. When will they ever end?

Discussion
Comment receiving replies
@hrhwilliam

Radiation side effects with H&N cancer. When will they ever end? Part II:
Members have reminded me of a couple of issues which I had forgotten about but actually still cannot ignore so I will include them here today. I live with these (6,7, and 8) and don't even think about it.
5) Neck/Throat Pain from a sneeze, severe enough to cause tears in the eyes. This lasted about 10 years. When I felt a sneeze coming on, it was terror. Now I actually enjoy a good sneeze.
6) Nose "Runs" when eating. This is probably a saliva re-route after radiation turned my mouth into raw hamburger. This continues to this day but has been improving over the past two years. Must always eat with a napkin to dab my nose. This can be done discreetly however.
7) Thyroid Bruised. The radiotherapy I had was Photon so as a result my thyroid was bruised. The thyroid went low about six weeks after treatment ended and suddenly too. Then it went high. A scan showed one enlarged wing (there are four like a butterfly). Twenty plus years out I continue to take a very small amount of medicine to reduce the thyroid output so I don't get jittery and have a shortness of breath. I can live without the medicine but with it life is easier. To have the thyroid ablated I would be totally dependent on thyroid replacement medicine. I take Methimazole 5mg twice per week, a very minimal amount.
8) Food Pockets. I once had a nice oral cavity the way God intended, but after radiation bombardment I was left with ridges and scarring. Within these folds and pockets food particles like to hide. Spices are the worst but it all needs to be delt with after eating. It improved within a year or so after treatment but never back to original so for that reason I brush after every meal regardless where I am and I travel with a water pick just in case it is necessary to use it. Often a good water swish will suffice. Oral care has been a top priority since early recovery.
9) Loss of specific memories. Radiation about four or five weeks in literally blew the hair off the back of my head in a very finite line. I have no doubt the brain took a bit of a hit as well. I had a photo and am still searching for that. Anyway I lost specific memories about people, places, math formulas, foreign languages, etc. One does not know what one does not know and that can be scary. When you don't recognize an old friend or swear you have never been to a certain town yet know exactly where the hardware store is, that can throw you off a bit.
More to follow. I appreciate the other members who have inputted their thoughts and comments. All any of us have been through has just been a difficult but not impossible road. I wish all of you could end up enjoying a new normal and I know many of you have. Time heals all wounds, even cancer.

Jump to this post


Replies to "Radiation side effects with H&N cancer. When will they ever end? Part II: Members have reminded..."

I noticed that I started reaching for a Kleenex every time I sat down to a meal. Never thought anything about it. Never occurred to me that it could be from my radiation treatment for tongue cancer.
I may have to rethink some of the other oddities in my life since the treatments ended.

I also had the hair on the back of my neck come off in a straight line. My wife asked me if I had cut it with clippers. My radiologist explained to me after I asked that the radiation went in. 360 arc around my head.

You know if it wasn't so serious this would seem funny to the un-initiated non-cancerous person. The list goes on and on, heaps of signs, symptoms, pains, losses and general ill health.

It is a sad fact of Radiation and Chemotherapy, that they may cure the cancer but not the patient. We as those who have undergone all this wonderful modern medicine can attest that it may work, but we don't work so well afterwards. I think I have had all of the symptoms that William is going through in his list. I could keep Kleenex going with the amount of tissues I use in a year. They are now a constant companion, along with pain pills and normal medication for any number of complaints.
But! I am alive and recovering from a stage four cancer in my neck. My Oncologist said when I asked about my prognosis well, we treat everyone from stage 1 to stage 3. I asked what my stage was from stage 1 to stage 4. He said I was a 3 Plus. Because they don't treat stage 4. You just get to put your affairs in order and ensure your will is up to date.

Where there is a will there is a way. Three and a bit years on I started my course of getting new Top and Bottom dental plates today. Yes all my teeth either fell out or just plain rotted off.
Makes it a bit hard to eat when your Gabby Hayes, he was an extra star in so many old western movies and did it all with a tooth vacant mouth.

Onwards and upwards for me, pains, problems, phlegm, mucus, choking, coughing, sneezing and eating. I will be there, living the dream.