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@pmmar1

Thank you for your reply. I am 78 and have not lost any weight but I have a "natural" BMI of 15 (at one time I was a competitive runner) and I have been advised to go to a nutritionist to help me put on weight to fight the MAC. My primary care doctor submitted a referral last Friday and I haven't heard back from a nutritionist at this point. But these things take time unfortunately.

Have you considered changing doctors? It's not fun to do so, but it seems to me you are struggling and deserve better treatment. I wish you the best also as we take similar but, like others, different individual paths. pmmar

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Replies to "Thank you for your reply. I am 78 and have not lost any weight but I..."

@pmmar1 - The pulmonary doctor I'm using is actually the third one since my diagnosis. The first one I used did not seem to be very competent or knowledgeable about MAC. He loaded me up with the strong antibiotic and insisted I take all of them together and on an empty stomach. It was awful. He finally said, "I can't help you." He never offered to do a referral or even give me any literature, etc. to move forward. The next one I contacted because of help through this forum--he was great but it was a 3 1/2 hr. drive for my appointments. I asked him if he knew someone closer who he would be comfortable taking care of me. He instantly recommended two docs an hour away. That's who I've been seeing since. I'm not going to make another move at this point because I'm doing well. If things change, I'll probably reach out again. Thanks.