Has anyone taken Lynparza?

Posted by 2opinion @2opinion, Apr 19, 2023

I am so confused . Diagnosed April 22 . Double mastectomy in September 22 reconstructive Nov 22. I just started taking lynparza. Anyone familiar. I have the Barca 2 gene. My file show diagnosis as Malignant Neoplasty. Anything would be helpful

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Lynparza is for BRCA positive ovarian cancer, is this what you have?

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I am TNBC and BRCA2+ and meet with my onco next week but was also informed I would most likely be on Lynparza.

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Wow, I had not heard that one yet, I didn’t know it had been approved for breast cancer yet.
Thank you for sharing.
I look forward to hearing about your experience with this new drug. I am praying for easy.
Will you come back and share with me?

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Just spoke with Onco and we're starting the process to get insurance approval and payment assistance with Lynparza - Onco said probably be on it for only 1 year. Her thought is start at lowest dosage then work our way up in dosage as we see my tolerance. She believes that if you start at the max dosage and user has bad reaction - they may stop taking rather than reducing dosage. She prefers to start low ensure tolerance is good then increase from there. Thank goodness it's only for one year. As soon as process is complete and I know how I tolerate - I'll update, but that may be a month from now.

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Do you know what the lowest dose is?

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My first week on it was ok but since then I feel like I have the worse flue ever. My bones hurt, not happy

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@auntieoakley

Lynparza is for BRCA positive ovarian cancer, is this what you have?

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No I do not.

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@2opinion

My first week on it was ok but since then I feel like I have the worse flue ever. My bones hurt, not happy

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@2opinion - how are you doing on Lynparza? I know you started in April and its been a couple months. I'm still trying to get everything in place so I can start on the medicine. I saw you dx - mine is different - I'm TNBC & BRCA2+. How long will you take this medicine?

I'd be interested in your side effects and what is your dosage. Mine will be 100mg 2 tablets/twice a day (so total 400 mg/day).

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I was on Lynparza for three years. I did not have many side effects.

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