1. < Prostate Cancer

Any hope for aggressive metastatic prostate cancer?

Posted by jojoteacher18 @jojoteacher18, Apr 21, 2023

My husband, 60, just got an MRI report that stated aggressive metastatic prostate carcinoma >15 that spread to bladder and anus walls. We have an appointment with the urologist in 3 days. This feels so hopeless. Symptoms have been difficulty urinating mostly. PSA ranging 5-7 over the past month. IS THERE HOPE?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

melcanada | @melcanada | Apr 25, 2023

On Xtandi Jan 23 and now Xgeva shot Apart from tired feel great

Stage 4 Mrpc is in my L1 3cm and small in T10 T11 L2 had 3cm was radiated 2 years ago 40 radiation in 2018 on prostate

5 years now Radiation oncologist says 5 more very possible and more

REPLY
proftom2 | @proftom2 | Apr 25, 2023

Yes, on hope. There is hope, and lots of it. Soon your husband's prostate cancer will be staged. From there, a treatment plan will be made. The Trauma from the moment of diagnosis will slowly subside but return. The "moment of diagnosis" is only a benchmark, a moment in time along the Stage IV Prostate Cancer Path.

Next, you'll enter your new life. The "living with cancer life" will slowly settle in. Treatments, medications, and doctor appointments will all be part of your new life. So will the friendship of other stage IV prostate cancer survivors. Certainty comes from hope.

REPLY
1 reply
nishok | @nishok | Apr 25, 2023

There is hope. Many many men discover they have prostate cancer and metastases somewhere. New treatments are being approved all the time. I was diagnosed with prostate CA two years ago and metastases in five places and I feel great. I had two different reviews of my scans and bloodwork. Both specialists agreed with my treatments and I have confidence in my urologist and oncologist. Don’t lose hope, there are effective treatments out there.

REPLY
jojoteacher18 | @jojoteacher18 | Apr 25, 2023

Thank you for replying
I need to hear this

REPLY
lcashell | @lcashell | Apr 26, 2023
In reply to @ringmastr1 "Yes! There is always hope! I was diagnosed with Stage 4 metastic PC in January 2023...." + (show)
@ringmastr1

Yes! There is always hope! I was diagnosed with Stage 4 metastic PC in January 2023. It had spread to my lymph nodes, hip, L4, and sacrum. I also have a 3cm lesion on my liver. My PSA was 359. I'm 54. My initial reaction was complete panic and I expected to be dead within months. My doctors at Phelps Hospital in Tarrytown came up with a plan and started treating me. Standard ADT of Abiraterone, prednisone and Lupron. Xgeva shots every month for bone strength. 5 radiation treatments for my affected bones. My PSA is down to 2.6 and my doctors are talking about me being around for more than 10 years at this point. I know there are no guarantees with PC, but I'm happy with the hope that my doctors have given me. I actually feel great. No side affects from any treatment or the PC (except for the lower libido). Talk to your doctors. Make sure you get a second opinion too. I went to Memorial Sloan Kettering in Westchester for my second opinion. I have confidence in my doctors and I continue to have lots of hope. Hang in there and continue to chat with people here. It's a great form of group therapy. Best wishes to you and your husband.

Jump to this post

You have opened my eyes to something. So they can do radiation treatments on the bone? I had no idea. I always thought if it gets to the bone… I’m a gonner.

REPLY
1 reply
ringmastr1 | @ringmastr1 | Apr 26, 2023
In reply to @lcashell "You have opened my eyes to something. So they can do radiation treatments on the bone?..." + (show)
@lcashell

You have opened my eyes to something. So they can do radiation treatments on the bone? I had no idea. I always thought if it gets to the bone… I’m a gonner.

Jump to this post

It is a treatment option. I had a dull pain in my L5 or sacrum (I am not sure which). Shortly after my 5 radiation treatments, the pain disappeared. I am getting a bone scan within a month to check things out.

REPLY
hairbrain | @hairbrain | Apr 26, 2023

Have stage IV prostate cancer, no insurance, scans last week demonstrated innumerable sclerotic foci lesions on my pelvis, spine and chest along with compression fractures of T8-T10. Seeing my oncologist next Tuesday. Feel like I am dying. Any hope or should I ride this out.

REPLY
3 replies
hairbrain | @hairbrain | Apr 27, 2023
In reply to @hairbrain "Have stage IV prostate cancer, no insurance, scans last week demonstrated innumerable sclerotic foci lesions on..." + (show)
@hairbrain

Have stage IV prostate cancer, no insurance, scans last week demonstrated innumerable sclerotic foci lesions on my pelvis, spine and chest along with compression fractures of T8-T10. Seeing my oncologist next Tuesday. Feel like I am dying. Any hope or should I ride this out.

Jump to this post

Thank you.

REPLY
hbp | @hbp | Apr 27, 2023

Often getting medication to slow the cancer down also works to eliminate or significantly reduce the pain. I hope you do not give up as there is pain management medication as well as meds to address the cancer. Best of luck to you and hang in there, There may not be a cure but the doctors know ways to make this cancer one that you can live with for a long time. Good luck!

REPLY
1 reply
melcanada | @melcanada | Apr 27, 2023
In reply to @hairbrain "Have stage IV prostate cancer, no insurance, scans last week demonstrated innumerable sclerotic foci lesions on..." + (show)
@hairbrain

Have stage IV prostate cancer, no insurance, scans last week demonstrated innumerable sclerotic foci lesions on my pelvis, spine and chest along with compression fractures of T8-T10. Seeing my oncologist next Tuesday. Feel like I am dying. Any hope or should I ride this out.

Jump to this post

2018 had 40 radiation 2020 it met to L2 Had intense radiation which blew it away Back on Zolodex and continue

Jan 23 started Xtandi as MRI and PET showed L1 had 1 minc ( too close to radiated ) and T 10 and T 11 small spots
PSA dropped from 9.8 to 4 in 2 months and now 1.7 Added 11 week injection of Xgeva which takes calcium from blood and pushes it into bone Take 1200 mg of calcium daily
So since 2017 discovery of AGRESSIVE through sensitive to now resistive its been almost 6 yrs New drug coming Radiation oncologist say look at 5 yrs then a new treatment So I am 78 now adding 5 enjoying every day but tired gets me to 83 Then new drugs Exercise and eat well and prayer ever day I try to go to mass daily as its my first appointment of the day 🙂

REPLY
2 replies
View MoreView Less
Please sign in or register to post a reply.