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CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: Feb 17 10:21pm | Replies (151)

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@astanko

Becky, how are you doing nowadays? Any updates? I had a Rituxan infusion in December and am currently not on any meds (done with the prednisone). I'm due for my next Rituxan in June, only it will be the slightly different Ruxience instead. I'll keep everyone posted. I believe the only Rituxan side effects I've had are (ironically, since it's an arthritis treatment) sore joints. Really quite sore shoulders, elbows, hips, knees. I found that yoga helped tremendously - better than taking Advil or Tylenol for some reason. I did have one small reaction (itchy ears - lol) to my first Rituxan dose but the nurses were very proactive and none of the several subsequent doses have had any issues at all. The list of side effects for Rituxan is truly terrifying but I have had no problems with it whatsoever and my neurologist said that my brain looks "beautiful" on my last MRI. I have residual gliosis (a fancy term for scar tissue) but that's it. If it's affecting me, I'm not aware of it. So, I'm happily turning into an old timer like you! I'd love to know how you are doing when you have a sec.

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Replies to "Becky, how are you doing nowadays? Any updates? I had a Rituxan infusion in December and..."

@astanko How wonderful to hear from you and know that you’re recovering. I’m not doing as well. I start to recover and then I get hit big time. Maybe it’s just that I’m much older than you! I was sick most of the winter because i had a major reaction to mycofenolate It was diarrhea that happened all the time. Lost 20#. So now I’m on mycofenolic acid. While they were trying to figure out what was wrong, they diagnosed another problem—pancreatic enzyme deficiency so I got to add more pills to my daily hoard! Not going to start tapering until we return from several family trips.
I tell you, I don’t know how I would have done this without my husband!!!!
Will you keep me posted with your good news?