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"Rubbery" Legs?

Neuropathy | Last Active: Jun 1, 2023 | Replies (107)

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@ssjohns

Well, we have that in common Ray. All my doctors could do is shake their head and send me to another doctor, send me for more bloodwork or physical therapy. I switched to a new Neurologist and he did an EMG, at my request, and the needle conduction study. Mystery solved and it only took eight years. Now he wants to send me to Shands (UF Health) in Gainesville FL. Impossible to get an appointment there until September. At this point I really don’t know what more can be done and I really don’t want to have to pay somebody to take me to the doctor 2 1/2 hours away just to hear him say “ well, there’s nothing we can do.” I will keep the appointment and decide later if I’ll cancel.

I will be sure to look up your magic socks and research them.

Thanks for sharing.

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Replies to "Well, we have that in common Ray. All my doctors could do is shake their head..."

Good morning, ssjohns (@ssjohns)

Going from one doctor to another can certainly be frustrating. It has been for me. And still is, if a little less so: a few months ago I decided upon a program I'm calling (my own made-up word!) "de-doctorizing." The idea behind de-doctorizing is –– insofar as I can, and making exceptions for emergencies –– not allowing my calendar to get all gunked up with doctors' appointments. If possible, I'm trying to limit those appointments to never more than two-a-month (i.e., Week #1 with an appointment, Week #2 without an appointment, and so on = 4 weeks, or one un-gunked month). So far I've been pretty good at de-doctorizing. Yesterday, I met with my neurosurgeon (which I'll tell about in a separate post); yesterday's appointment was only my second doctor's appointment in April, so it looks like I'll be able to declare April a de-doctorizing success. LOL!

Ray (@ray666)