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GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)

Polymyalgia Rheumatica (PMR) | Last Active: Oct 25, 2024 | Replies (277)
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@krueg

I sure hope mine burns out. Thank you for sharing. I'm so glad I joined mayo connect. It is so nice to hear from people who are experiencing the same thing.

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Replies to "I sure hope mine burns out. Thank you for sharing. I'm so glad I joined mayo..."
redboat | @redboat | Apr 26, 2023

My rheumatologist says I have PMR with "presumed" GCA. I was diagnosed in Feb 2023, and originally was given 20 mg//day of Prednisone.

However, I experienced severe inflammation that resulted in an emergency room visit, after which the ER doctors upped the dosage to 60 mg/day of Prednisone.

I am now being treated with weekly shots of Actemra and tapering off Prednisone. I'm currently taking 35 mg/day. If there are no relapses, I will be down to 10 mg in June, then completely off of Prednisone in October.

Before treatment, the pain was excruciating, so Prednisone was very helpful, but the side effects are very difficult.

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