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PNET Surgery: My recovery journey

Neuroendocrine Tumors (NETs) | Last Active: May 22, 2023 | Replies (72)

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@michellesimpson10

I’m so glad you are sharing this with us. I was recently diagnosed with stage 1 NET in the tail of my pancreas about 2cm in size. I have an Oncologist who specializes in NETs. My other Gastroenterologist thought the tumor was a splenule after a surgical needle aspiration biopsy showed only blood and tissue without any malignant cells. However they then had me do a SPECT CT and then a PET scan. Which finally confirmed the NET.
I am set to have the tail end f my pancreas removed(15-25%) and also my spleen I. May 8 in Austin Texas. I’m concerned but glad to have options for treatment. I am also diabetic and my sugars are usually in the high 200-400 even on insulin and metformin
Your experience has a helping me prepare for my surgery.
Did your Dr have you drink a pre surgery prep called Impact AR twice a day starting 5 days prior to surgery ? Also did they tell you to drink a carbonated drink on the way to the hospital? This was what the PA advised me to do.
You’re in my prayers

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Replies to "I’m so glad you are sharing this with us. I was recently diagnosed with stage 1..."

@michellesimpson10
Not familiar with the ImpactAR, but it seems a good way to prepare you for speedy recovery.
I had to take large doses of 2 antibiotics twice daily 2 days before surgery.
Have not heard of the carbonated drink..
And I was considered a diabetic( but without medication). Before surgery my A1C was 7.1. On april 20 (2.5 months after) it was 5.4! Looked like even the small part that is left of my pancreas now is working and producing enough insulin! Hope you will have a sucsessful surgery with the best outcome!!💜