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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 22 hours ago | Replies (6907)

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@briarrose

Hi Kat,

So sorry to hear of your battles. I never head of FMD seizures with migraines. How awful!
I also believe I have fibromyalgia but never diagnosed. From what I am reading since developing migraines there are lots of medical conditions related, or associated, with migraines and I kept reading the same ones over and over. Fibromyalgia is certainly one of them. I have had vertigo in my life but not with my migraine condition. Vertigo is so debilitating. I literally would have to crawl on the floor to try to get to my bed. I can imagine it's a nightmare for you. In the 1990s I had 3 very short episodes of wavy lines in my eye sight. I actually thought I was having a stroke...but later learned it was "ophthalmic migraines". That was the extend of my migraine condition. I have 3 first cousins, all sisters, who had migraines since they were teenagers. I now was told there is a strong "genetic" component to migraines. One is in her 70s and they are abating - the other two are in their 60s and no longer suffer from them. I am certainly a late bloomer. As I said I hit my head in 2019...and then had a "thunderclap" headache in 2020. What followed was 9 months of migraines every single day. A nightmare. Things improved but then got worse so I am dealing with them daily. Medication changes left and right. I am 68 now. Yes, Botox might certainly me helpful for you. Look into it. Not sure if it would help me...my neurology team has never mentioned it as an option for me. Restarting my preventative - Emgality monthly injections. Are you on a preventative? Also, restarting Ubrevly but at 100 mg. vs. 50 mg. for an acute attack but it only works for a few hours. I have heart disease so I can not take the triptans.
Take care,
Marie

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Replies to "Hi Kat, So sorry to hear of your battles. I never head of FMD seizures with..."

I use neurtec as a preventative every other day. It can be used as a rescue or preventative medication. It has changed my life. My vertigo was so bad I could not walk. And I was over sensitive to light and sound. Now it is much more manageable.
Best of luck to you,
Kat

Hey Briarrose, Daily headaches/Migraines do along with fibromyalgia for me. I have had fibromyalgia for 27 years. Some days are harder than others. I'm so sorry you are going through this. Love, Hugs & Prayers....