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@lindy1965

Hi Kitty,
Thanks so much for your response.
Yes, it has become a very lonely existence. I’m tired of people saying things like “you look fine” or “ yeah, we’re all tired”…. They don’t realize that just washing our hair and getting dressed is sometimes all We can do in a day.
Sometimes I don’t even get that far. I think all we can do is pray that time does heal. I’m getting so frustrated and impatient. I’m trying to learn how to better pace myself. I can’t even visit with my family for a couple of hours without having PEM for days or longer. I’m 58 and single. I don’t want to be this way forever.
Lindy

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Replies to "Hi Kitty, Thanks so much for your response. Yes, it has become a very lonely existence...."

Hi Lindy,
Thanks for your note. I can so relate to what you are saying..it is such a lonely existence. Nobody gets it..I work monday -friday and by friday night I am so exhausted, I sleep a lot on the weekend. Thank heavens for my cat..we take a lot of naps. I am 70 and single. I work for Fedex so my job is pretty physical and I do not know how I do it. They took all my PTO the last two years, cuz I was off so much after I got the initial infection and then it all broke loose when it destroyed my immune system , gut and colon among other stuff. I got home last friday afternoon and the only time I opened the door all weekend was to grab my newspaper off the stairs. It sis so frustrating, I refer to this is B.C. and A.C...before covid and after covid. How this darn disease has changed our lives. Anytime you want to chat..let me know..Thanks for being there..we will get through this..Sincerely, Kitty2