Hello Cheryl,

Thankfully I have that handled. All doctors under one roof. Except the neuromuscular. She is part of another group. Because i see so many specialists and take so much medication its hard to keep up. That’s true, diagnosis and conditions and meds are listed on the network. I don’t know what I would have done without the portal to talk to doctors. But this neuromuscular does not want to prescribe before she diagnosis which I don’t blame her. But its taking so long and I’m in so much pain it had me cancel another appointment today, the cardiologist. I had to reschedule that. It’s too much for me. I’m overwhelmed. Even if they explained one condition if it links to another organ, they refer out. They in my experience won’t really comment on another specialty as it is not theirs. Also, when i go to an appointment, I just cover the basic of one problem. They don’t want a book they want a sentence, on the “chief complaint”. That is hard for me to summarize. I try. Then I have to take notes and they look at me like I have two heads. So Ive learned go in with: 1. Chief complaint 2. Diagnose 3. Remedy/corrective action. So I trust with the follow ups I go to the specialists keep records and its on the portal. I think I need a new pcp. I may soon be going out of town for that. Same network. I have a regular neurologist who has helped me when my pcp was on vacation for a month at a time. That doc told me where to go what to do, she has been acting as my pcp. She’s phenomenal. I can’t have that. I ended up going to the er because she wasn’t around. Not trying to bash anyone, just the facts. I’m still waiting on Mayo lab work looking for antibodies etc its to take 3+ weeks I have a few days to go if all goes well, MRI, CT and maybe spinal tap. Than maybe I’ll get meds to help these horrendous spasms that have already almost sent me to er. I hope she gets an idea quick (she has idea but is r/o etc). I want her to be thorough which she is. But its taking time. I’m feeling alone with these symptoms that scare me. When the spasms come on, it’s unbearable. I’m sorry to complain, I thought neuropathy was bad. A spasm that holds on is too much to bear.thank you for your prayers and guidance. Sometimes I feel alone with all this and think the worst. I’m trying to be hopeful, but the longer I wait, I’don’t know. I don’t have a lot of confidence in my pcp. I need another who can handle complex cases. Thanks. God Bless You. Feel better.

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