Hi @charlene630, welcome. I see that you recently had a blood test to check the chromogranin A (CgA) levels in your blood.

I moved your question to this existing discussion:
- High or Fluctuating Chromogranin A Level: What does it mean?: https://connect.mayoclinic.org/discussion/chromogranin-a-level-was-539/

You can click the link to read previous posts where you'll also read information about CgA testing and can connect with members like @hopeful33250 @dbamos1945 @phyllisden @tomewilson and others.

CgA levels can be elevated in people with a range of health conditions, including inflammatory bowel conditions. However, CgA testing is typically reserved for the diagnosis and management of patients with neuroendocrine tumors.

Charlene, Is testing being done to confirm or rule out a neuroendocrine tumor for you? When will you be doing the 5-H1AA test?

Hello @charlene630,

I would like to join Colleen (@colleenyoung) in welcoming you to Mayo Connect. It is good that you posted your concerns. I always feel that worries are lessened when you share them with others.

I hope you take the opportunity to read the other posts in this discussion. As Colleen said, elevated CgA levels can indicate NETs, but CgA levels can also be elevated due to certain medications (like PPIs) and/or other health conditions.

It is good that your physician is following up with the 5-H1AA test. Have you had any other tests and/or scans to check on the reason for the severe diarrhea, such as a colonoscopy and/or PET scan? Are you having any other symptoms?