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Ethambutol, Rifampin, and Cipro combination drugs

MAC & Bronchiectasis | Last Active: Apr 27, 2023 | Replies (8)
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@pmmar1

Hello, Sue
This is an update from our communnication of April 10-11.

I shared with you the 3 antibiotics my pulmonary doctor prescribed: the Ethambutol, Rifampin, and Cipro (since the Azithromycin was ineffective for my type of MAC). I took all 3 together for a month, with the addition of the Cipro 2+ weeks ago. The past two weeks have been very trying for me with unwanted side effects.

I had a virtual meeting with my doctor yesterday and we decided I needed to go off all antibiotics, to wait until my next appointment with him in a month, and to use a flutter valve and nebulizer w/7% saline solution. We will decide what to do beyond my appointment with him, which may mean going back on antibiotics, perhaps two as opposed to 3.

Meanwhile, at your suggestion, I have made an appointment with my health system's nutritional services to discuss gaining weight. At age 78, on or off of antibiotics, I admit I need a higher BMI to fight MAC in the future. Thank you for pushing me in that directions.

Best wishes to all as we journey together.

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Replies to "Hello, Sue This is an update from our communnication of April 10-11. I shared with you..."
fdixon63 | @fdixon63 | Apr 26, 2023

Hi pmmar1, I can relate to some of what is happening to you. I won't go back four years when this all began and my inability to do the 3 antibiotics. I lost 15 pounds so had to stop--BMI now 18. I'm 77 years old and just can't seem to gain my weight back. Currently I'm feeling much better and am able to exercise. I neb twice a day with 3% Sod Chlo. My current MAC doc won't consider giving me the 7%--I've asked him for it twice. He says the science doesn't support it as making a difference. Maybe his ego is telling him I'm trying to "drive the train." I've asked my pulmonary doc and my GI doc for referral to a nutritionist and they said OK but never do. Best to you. Faye

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