1. < Osteoporosis & Bone Health
Mentor

Are you taking Reclast for osteoporosis?

Posted by Becky, Volunteer Mentor @becsbuddy, Jul 21, 2020

Two years ago I was diagnosed with pretty bad osteoporosis because of the prednisone I was on for my autoimmune disease. I started taking Fosamax (a bisphosphonate) and had no problems. Today, the endocrinologist suggested that I switch to Reclast for 3 yearly infusions. Has anyone else taken this drug? What side effects have you had?
Thanks

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merle725 | @merle725 | Apr 23, 2023
In reply to @jmd5 "I had a Reclast infusion about 8 years ago with no reaction. Then I moved and..." + (show)
@jmd5

I had a Reclast infusion about 8 years ago with no reaction. Then I moved and my new doctor said that my osteopenia had not progressed. She told me to take at least 2K units of Vitamin D and calcium daily, and to keep walking and hiking. It has been 7 years since I have needed another infusion. This year she told me that there was a small change and that I could get another infusion and that it was up to me. I asked her what she would do because she knows more about this than I do, and she told me that she wouldn't do it! She would just keep doing what I have been doing for now.

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Lucky you! I have had Tymlos, Evenity and now Reclast. The first one gave me a large kidney stone, the 2nd one gave no improvement- in fact my Dexa worsened! And Reclast has given me terrible leg muscle pains.

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1 reply
jmd5 | @jmd5 | Apr 23, 2023
In reply to @merle725 "Lucky you! I have had Tymlos, Evenity and now Reclast. The first one gave me a..." + (show)
@merle725

Lucky you! I have had Tymlos, Evenity and now Reclast. The first one gave me a large kidney stone, the 2nd one gave no improvement- in fact my Dexa worsened! And Reclast has given me terrible leg muscle pains.

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I have always suffered with leg cramps, but it happens if I wear a different shoe, or do to much during the day. I use Theraworks and it has helped me. I massage it into my legs and I do get relief and hardly suffer now. Cheers, Judy

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windyshores | @windyshores | Apr 23, 2023

My doc was going to start Reclast with a test dose with my Tymlos now finished. But my eGFR was 36, indicating stage 3 kidney failure, approaching stage 4. I don't think he can prescribe Reclast with that kidney value. I will redo after drinking more water: I believe I was dehydrated. But even hydrated I am stage 3. Anyone else?

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1 reply
bruceandruth1970 | @bruceandruth1970 | Apr 23, 2023
In reply to @jmd5 "I also have lots of back pain. I was diagnosed with early acquired degenerative disk disease..." + (show)
@jmd5

I also have lots of back pain. I was diagnosed with early acquired degenerative disk disease at age 32. I have just gotten used to living with it because I'm scared of surgery. I've heard too many stories of people having to go back for more. I did a lot of reading this morning and there was a lot of good information on one of these pages for Boron for Osteo Arthritis and joint pain, so I went online and did some research about it and it is not expensive so I thought I would try it. I ordered it and I'll see how it works. I looked it up on Amazon and they tell you the ones that have the most positive reviews and so we will see. Cheers, Judy

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Thank you. I will be anxious to hear your results with it.

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merle725 | @merle725 | Apr 23, 2023
In reply to @jmd5 "I have always suffered with leg cramps, but it happens if I wear a different shoe,..." + (show)
@jmd5

I have always suffered with leg cramps, but it happens if I wear a different shoe, or do to much during the day. I use Theraworks and it has helped me. I massage it into my legs and I do get relief and hardly suffer now. Cheers, Judy

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Thanks! I'll check Theraworks out. I used voltaren, but it didn't help much.

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merle725 | @merle725 | Apr 23, 2023
In reply to @windyshores "My doc was going to start Reclast with a test dose with my Tymlos now finished...." + (show)
@windyshores

My doc was going to start Reclast with a test dose with my Tymlos now finished. But my eGFR was 36, indicating stage 3 kidney failure, approaching stage 4. I don't think he can prescribe Reclast with that kidney value. I will redo after drinking more water: I believe I was dehydrated. But even hydrated I am stage 3. Anyone else?

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Make sure it's not a kidney stone. Tymlos gave me one and I had never had problems like that before. I hope they are wrong. I thought Tymlos helped you!
My chart Rush says a score of 30-44 moderately to severely decreased. It doesn't say kidney failure. Kidney failure was a less than 15 score.

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windyshores | @windyshores | Apr 23, 2023

Sorry meant kidney disease. (My mother had kidney failure and I slipped, since it was still in my mind!)

Tymlos helped me tremendously.

This has nothing to do with kidney stones, or with Tymlos.

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1 reply
ljgraham166 | @ljgraham166 | Apr 24, 2023

Had a terrible reaction to Reclast never again. Had to take prednisone for a week

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2 replies
windyshores | @windyshores | Apr 24, 2023
In reply to @ljgraham166 "Had a terrible reaction to Reclast never again. Had to take prednisone for a week" + (show)
@ljgraham166

Had a terrible reaction to Reclast never again. Had to take prednisone for a week

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@ljgraham166 your experience makes me nervous. I don't have any other choice of meds at this point. I am hoping that a "test dose" (1/4?) with lots of water and slow infusion is tolerable- if I can get my GFR up enough to make the doc comfortable about my kidneys.

Has anyone else done a partial dose? How about premedication?

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Mentor
Chris Trout, Volunteer Mentor | @artscaping | Apr 25, 2023
In reply to @merle725 "I have had leg pains from the thigh to the calf on both legs for 6..." + (show)
@merle725

I have had leg pains from the thigh to the calf on both legs for 6 weeks. It is awful. Tymlos gave me a kidney stone. My Dexa score shows these treatments are not working. However, I fell down hard on my knees and hands but no bones were broken or damaged.

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Good evening @merle725, I don't think I have encountered a post from you since your arrival on Connect. I also cope with leg pains all the way down to my toes. It is interesting that this started with two toes on my right foot. Now it is similar to yours.

I am so sorry you have fallen. Have you ever considered PT for stability and freedom from falls? It is helping me and I am in my 4th month or so without crashing to the floor.

In your post, you mention that Tymlos gave you a kidney stone. How did you find out it was due to Tymlos? I was on Tymlos for two years and ended up with a kidney stone, a hospital visit, and quite a few questions. No one mentioned Tymlos.

Are you still on Tymlos?
May you have contentment and ease.
Chris

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