← Return to PNET Surgery: My recovery journey
DiscussionPNET Surgery: My recovery journey
Neuroendocrine Tumors (NETs) | Last Active: May 22, 2023 | Replies (72)Comment receiving replies
Replies to "@fabiant No she had a open incision, about 12" from center of stomach up. So a..."
Kim
Thank you. I'm being seen at the Mayo Clinic in Phoenix/Scotsdale. My oncologist specializes in treating PNETs. My surgeon, whom I'm meeting with on May 2nd for the first time, specializes in treating PNETS. I'm waiting to see what her recommendation is for this tumor. My Oncologist wants to do the observe and wait but it feels like a ticking time bomb. I'm not sure how slow this cancer grows. I'm just starting to learn all I can about this disease. The PNET is localized and well differentiated. They say it hasn't spread. I trying to understand the best options for me at this time. They say enucleation surgery is potentially an option. I'm trying to find information on this surgery. If you know of anybody who's had enucleation surgery, it would be great to communicate with them. Thanks,