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Anal Squamous Cell Carcinoma

Colorectal Cancer | Last Active: Mar 10 9:17pm | Replies (53)

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@kainesmamaw

I was diagnosed with Anal cancer in May of 2020. Since then, this has been one hellova ride. After being told 1 year max of dealing with it...wrong. Within the first 6 months, I was diagnosed a stage 4. The chemo and radiation was pure hell on me. Not gonna lie, having it in that area is the worst. You will want to have plenty of dresses as you will have blisters and swelling. You will need to have a squirt bottle to clean yourself after doing your business. And it is humiliating, but you'll get over it. My husband had to help me with putting the medicine on. You are gonna need to stay hydrated and EAT!! I have resorted to living on boost/ensure. Little Red Door Cancer Society provides it free to me with a prescription from my Oncologist team. As for any other options, radiation and chemo were the only ones available to me for stage 4 Anal Cancer.

Having since it has metastisized to my groin, liver and lungs. After having a lobe of my liver removed and been going thru chemo since the beginning, the disease wants to stay in my lungs but just found out last week that it has metastisized to my bones. I go to see my Radiation Oncologist tomorrow. I have been in remission 1 time and it was only for a month. Everything we have done has only been life sustaining. I have had times where I wanted to give up but now hearing that my time is nearing the end, just makes me want to fight harder!!

My advice to you is to get a second opinion and never give up!! Not sure if you are a believer, if so, PRAY!! And find someone you can confide in.

I didn't mean to scare ya but would rather be honest as to the possibility of what could happen.

I will pray for you. If you use Facebook, you can send me a friend's request @ Nickie Knauss. I use messenger to talk to a group of people dealing with Cancer.

Good luck and prayers 🙏🏻

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Replies to "I was diagnosed with Anal cancer in May of 2020. Since then, this has been one..."

I’m so sorry to hear all that you’re going through. My anal cancer was diagnosed this past September. It was stage 3. I had 6 weeks of chemo and radiation. My first scan was in March and 2 out of 3 inches of it was gone. They say the treatment continues to work for an additional few months after it’s stopped. It’s a constant roller coaster ride and series of doctor’s appointments. They say I have a 25% chance of it coming back. Even if I wanted to put it in the back of my mind for a minute, I couldn’t because I’ve been left with fecal incontinence from the radiation.I do so appreciate your honesty. I was lucky the first 2 times I had cancer. I’ve had a mastectomy and a thyroidectomy due to cancer. How long will my luck hold? I am not a religious person, but find myself praying a lot. I will pray for you and all of us in the fight of our lives. Thank you again for your honesty.