Does tortuous colon symptoms get better?

I’m so sorry- I understand! I have lived with this all my life and never been diagnosed until now (age 70)! But you find a way. I had rectal surgery at age 36 (fissures, fistulas, hemorrhoids, etc). Still no one mentioned this. I have always managed on my own, and this is a delicate balance. Not too much fiber, but definitely need some, be careful what you eat or you will suffer for days, etc. Even got a rectocele after not having a bm for 12 days after spinal fusion. I have avoided laxatives because they can keep over-working for days since digestion is so slow. Always wondered why I spent the whole (and I mean ALL) night crying and bleeding on the toilet before a colonoscopy, and then wasn’t even cleaned out all the way. Now I know it was because it takes me 2 days to digest what others do in a few hours.
And it does affect your schedule. At this point I don’t schedule anything before noon because I don’t leave the house before that. If it takes me until noon to go I will wait, because skipping a day now only causes pain & bleeding from internal hemorrhoids. Laxatives only end up causing days of diarrheal and leaking, so no. But glycerin suppositories occasionally help.
Not to mention it’s not a topic you can talk to others about comfortably- no one really wants to hear it. I don’t blame them! So you can’t really explain to clients or friends that you can’t plan on an early appt.
But hey, it could be a lot worse! I haven’t had to have surgery down there since that first one. It’s not cancer. And, thankfully, so far no diverticulitis or volvulous. And God sees me through- He knows the gory details and loves me anyway! Hang in there- find out what works for you to keep things moving and rely on yourself when you can. You’ll find a routine that works, and you’ll manage. There are people like me out here who understand and care❤️

I’m so sorry ur going thru this! I don’t have any medical answers for u but I want you to know that God does care for you! Just tell Him everything!
I was diagnosed with Gastro paresis about 10 years ago and either esophageal spasms (or Achalasia) more recently.
Something I just started trying was massaging my stomach following the digestive track. I rub up on my right side of my stomach, across the top, and down on the left side. I also massage my abdomen as a whole. I do this for about 15 minutes a day, sometimes longer and more than once a day. I’ve seen incredible results in having actual bowel movements vs diarrhea or constipation!
I’m having another endoscopy & minomitre(?) in a couple weeks followed with another colonoscopy to get to the “bottom” (Lol) of my issues.
I pray u get relief as well as good advice from the great people here😎

Thank you!

I too have a redundant and torturous colon. And I also use abdominal message to help with motility. I seem to go from constipation and not diarrhea but softer stools. I had used Miralax and Citracel for years but had incontinance issues with the Miralax. I am currently taking Slow Mag twice a day. I seem to have trouble with certain foods as I have IBS as well. I am doing Pelvic Floor PT and they have been a big help. Having a colonoscopy is a nightmare and I think at this point I am done with that. One big issue with me is gas and controlling it. I often have no idea it is there and suddenly I pass it. Very embarrassing but impossible to control. I think because of all the twists and turns. I am afraid I am developing a small amount of anal prolapse. Seeing a new Gastro next month. Found my old one to be too busy doing procedures to help me solve my issues. Thank goodness I found a wonderful Primary Care Dr. That is helping me. Mentally this is such a difficult journey! I had an Aunt that never left her house the last 10 to 15 years of her life and a mother that pushes through, but has terrible incontinence! I am 69 years old and very active. My PT person is so against surgery, but sometimes I think it might be good!

I am 69 & understand your issues. It is comforting to know there are others out there suffering with these difficulties but wouldn’t it be so wonderful if there was a solution that gastroenterologists could agree on. I found them pandemic became a good excuse to not leave the house & has just exacerbated my tendency to avoid outings.