Joanne,
You have described my life.
I have been sick with long covid since 2020 as well. In January 2021 I got the Moderna vaccine and I hadn’t recovered from it a month later but my primary care told me that I should get the second vaccine as well. Three days after my second vaccine I was in the hospital with severe chest pain. Long Covid has reactivated my Epstein-Barr virus. I also have dysautonomia. Most doctors want to shrug it off as ‘depression’. It is so frustrating! I have tried many different supplements and I am super sensitive to medication‘s, caffeine, etc. Nothing seems to work and I have all of your symptoms but I think the worst of all at this point is the profound exhaustion and PEM. My primary care doc basically washed his hands of me because I won’t go on anti depressants. I did try one earlier on and it just made me even more fatigued. I have not worked since Fall 2021 as I passed out at work on a few occasions.
I wish someone would help us.
No one understands… I feel abandoned by people who used to be friends. We can’t give up hope!