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@jholland

Yes, many times. Lots of stuff but not all useful. Very disappointed to find a surgeon recommended that I Saw who new nothing about EDS. Not a secure feeling. Tried to find research groups in Northern Europe where EDS originates but nothing. Former Ortho surgeon went to conferences in Germany, Netherlands, etc to present THP and EDS but I cannot find much. My EDS doesn’t lay down Ça to secure implant do O have a super long one infused with Ça which seems to work. Surgeon passed away and mediocrity stepped in.

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Replies to "Yes, many times. Lots of stuff but not all useful. Very disappointed to find a surgeon..."

There is another organization in the UK that lists current and completed research information if you haven't also seen it - https://www.ehlers-danlos.org/research/current/.

@jholland You’re right, not many doctors know about autoimmune diseases. Your best choice is a rheumatologist at a major medical center.
Have you ever seen a rheumatologist?