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DiscussionHow do you cope with Mixed Connective Tissue Disease (MCTD)?
Autoimmune Diseases | Last Active: 2 days ago | Replies (110)Comment receiving replies
Replies to "Yes, many times. Lots of stuff but not all useful. Very disappointed to find a surgeon..."
@jholland You’re right, not many doctors know about autoimmune diseases. Your best choice is a rheumatologist at a major medical center.
Have you ever seen a rheumatologist?
There is another organization in the UK that lists current and completed research information if you haven't also seen it - https://www.ehlers-danlos.org/research/current/.