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DiscussionHow do you cope with Mixed Connective Tissue Disease?
Autoimmune Diseases | Last Active: Aug 8, 2023 | Replies (65)Comment receiving replies
Replies to "Hi @jholland, Have you seen The Ehlers-Danlos Society website? --- https://www.ehlers-danlos.com/"
Yes, many times. Lots of stuff but not all useful. Very disappointed to find a surgeon recommended that I Saw who new nothing about EDS. Not a secure feeling. Tried to find research groups in Northern Europe where EDS originates but nothing. Former Ortho surgeon went to conferences in Germany, Netherlands, etc to present THP and EDS but I cannot find much. My EDS doesn’t lay down Ça to secure implant do O have a super long one infused with Ça which seems to work. Surgeon passed away and mediocrity stepped in.