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New DIPNECH diagnosis, need advice on doctors

Neuroendocrine Tumors (NETs) | Last Active: Nov 17 7:33am | Replies (39)
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@tlf56831

Yes, but what I really need is to talk to someone that has had the everolimus, and what their experience was.

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Teresa, Volunteer Mentor | @hopeful33250 | Apr 24, 2023

@tlf56831
If you would like to post with someone who has taken this medication, I found one person in the NET discussion, @davisnrn. Just begin the post with the name (just like I've typed it, starting with the @ sign) and then ask your question about their experience with the medication.

There are some others on Connect who have used this as well. Some were in the Breast Cancer discussion group. You can use the search icon (it looks like a small magnifying glass) at the top of the Connect page and put in the name of the medication. Anytime that medication has been named the post will come up. Then you can post to each person.

Will you try that and let me know if you get any responses?

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