← Return to Husband With Slow Cognitive Decline: So sad & confused

Discussion
Comment receiving replies
@maryvc

Hugs to everyone out there and thank you for your posts.
I just came to this site after another argument and crying walk. This was so helpful. I’m so sorry for all that you are going through with MCI. Me too,
My husband is 76 this year. Several years ago friends noticed “something” off and he had an MRI that showed signs of normal aging. This past year he seemed to be “slipping” more and showing more short term memory loss. I was encouraged to have him evaluated. His MRI showed ischemic changes but nothing more. My doctor suggested he have a Neuropsych eval and testing so we started that journey. I made the appt but then his pcp wanted him evaluated by a geriatrician at a hospital aging center. I kept both appts. At the Center for Aging appt we were interviewed by the doctor and social worker then my husband had a short eval- Moca?? and scored 26 out of 30. He was diagnosed with MCI. Not dementia and a hopeful future.
They said he had to have a driving test. I was wreck and during the intense eval and driving with the occupational therapist, I prayed as hard as I could then had to surrender to whatever. He passed and drives on familiar roads, no night driving and no driving in inclement weather.
Right now he is still paying the bills and watches our portfolio but we slow but sure I will be managing more and more and we have had meetings with s of our legal and financial advisors so that I have full authority on all accounts.
It’s been a hard couple months with this new diagnosis. I am going through the many stages of grief - denial, anger and too much fighting, prayer, sadness,
lots of tears, and not quite at acceptance. My husband realizes he has memory issues and is working hard - brain games, exercise, no drinking, etc. It is hard for him and I feel so guilty when I lose my patience.

Still wondering why? There is no family history or other health problems. My husband is a retired dentist exposed to mercury? Sleep? Had a study and will need a CPap. Alcohol? We did enjoy our daily wine- no more. He is not drinking and I’m on my own there.
We have shared with friends somewhat but on these difficult days I feel alone because this is hard to talk about with friends. That’s part of the denial- I want them to see him as normal for as long as possible.
But I would also like to talk but feel it would betray him.

And so we live and love and enjoy the moments. We are traveling- I do most of the driving and make all the plans. Have no idea what the future holds or how many years we have without full blown dementia.

So much more I could write and I did but lost much of it.
All I can say is you are not alone and I was glad to find you.

Jump to this post


Replies to "Hugs to everyone out there and thank you for your posts. I just came to this..."

I love what you wrote: “and so we live and love and enjoy the moments.” My husband was also diagnosed with MCI. The things I’m noticing most are short term memory issues, repetition of questions (within 5 minutes or less) and technical challenges that used to be his forte. I hear “where do we keep …(spatula / pizza cutter etc)???” On a daily basis. Like you, I want others to see him the way he has always been. This group is a wonderful support system. My husband’s sister (6 years older) just passed away from Alzheimer’s and he has watched her decline. That makes it even more difficult for him. You sound like a lovely person doing your very best on a daily basis. I guess that is all we can do.

My husband has been going through this for 3 years now. We’ve also gone through all of the same schedules. He has a second MRI scheduled for May. My husband is 71 and has always been on top of his game. Now, I am having a hard time following his conversations. I too feel guilty when I get impatient with him. I pray a lot. Thanks for your input.

What you describe so well is just what I'm feeling about my husband's losses. The fact of trying so hard not to get impatient. Trying to be extra kind and loving. And treasuring the moments when I get to feel as if I have him back for a short time, but realizing those times will be less and less frequent. Thanks for writing this post so eloquently. It really made me feel less alone,.

Take one day at a time. And I believe in prayer 🙏. It’s hard to watch the one who has been a pillar change.