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"Rubbery" Legs?

Neuropathy | Last Active: Jun 1, 2023 | Replies (107)

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@ssjohns

Hello. I am a new member and wanted to comment on the “rubbery legs syndrome.” I, too am suffering this symptom and having difficulty walking without a Rollator or rolling myself in my wheelchair. Sometimes I feel like I have the sensation of walking on stilts. I was only diagnosed in December with Peripheral since three neuropathy. Still not sure of the exact cause but I have had a back injury and herniated disc surgery, in addition, I have been a lifelong statin user. Which I’m told could be the culprit.

I am a retired, widow, and living alone, which makes it difficult, because I have to be extremely careful not to fall. I have had at least six falls in the past. My other symptoms are dizziness, instability, and blurred vision. I do not drive anymore and have literally become a prisoner in my home. I will hire a transport to go to the doctor and have everything else delivered.

I was wondering if anyone has had the spinal cord stimulator (SCS) implanted, and if you are having any success and pain relief. I am seriously considering this option. I have also been given the option to take the generic of Lyrica but after reading all of the side effects I’m not really sure. Does anyone else take this drug and doesn’t work?

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Replies to "Hello. I am a new member and wanted to comment on the “rubbery legs syndrome.” I,..."

Welcome to the Forum! I myself don't have any experience with either SCS or Lyrica but others do and posts pop up here often. I'm sure in the next day or two (maybe even later today) others will appear here with information that you'll find helpful. Once again, welcome! ––Ray (@ray666)

I take the generic Gabapentin and a month ago had my left knee replaced. I take it with a pain killer and it helps and gives me relief. I have had a morphine pump since 2012. It gives me a life, otherwise I'd be on a couch horizontal. After 20 years and seven implants, my main goal is mobility. As I am sure you can imagine, I've done it all, so the choices left are few. Living in pain is a losing game, so now I play to win that means seriously considering the choices offered to you. Think of this as a journey. To keep going you have to go forward and don't give up. I wish you success and hope you find relief,