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CAR-T Cell Therapy: Introduce yourself and connect with others
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 9 9:21am | Replies (224)Comment receiving replies
My name is Bruce/Elwoodsdad. I was diagnosed with Non Hodgkins large cell B lymphoma, Stage 4. It didn’t present with the traditional lumps, knots, night sweats, etc. I felt weakness in my hips and legs. I am 75 and figured my issues had more to do with age. I vetted a local oncology group, saw the doctor at 3:15, and was hospitalized by 8:30. I received my first R-Chop infusion the evening of 11/17. I have complete six infusions, but we still have evidence of lymphoma and liver issues. CAR-T is my next stop should I be deemed able to endure it. I am unapologetically fearful.
Replies to "My name is Bruce/Elwoodsdad. I was diagnosed with Non Hodgkins large cell B lymphoma, Stage 4...."
Bruce,
Did you have CAR T treatment? You’d be a year post treatment, or there about. I’m finding some of the threads in this chat hard to navigate!
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Hi Bruce,
I’m 70. I had CAR T-Cell at Cleveland Clinic in Ohio. In Feb 2022. It was easier than RCHOP. The infusion takes a mere 15 minutes. Then you will be monitored for 10 days. I felt fatigued & slept a lot. No energy. Fear not, you can do this. Take good care of your body, eat nutritional foods & avoid sugar & junk food. But most of all, be strong, have faith and remember this is a journey & you can do this. Sending you good thoughts, prayers and blessings.