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Panic Attacks with new diagnosis and fear of the unknown: What helps?
MAC & Bronchiectasis | Last Active: May 1, 2023 | Replies (64)Comment receiving replies
I know I have mentioned “fear” before…but…I’m really struggling with it still. Waiting to hear from NJH re when appointment will be…..I feel so fearful that I am isolating and I feel vulnerable….Talking to God often…….I see others seeming to cope better than I….they seem so strong….my husband said once I talk to the drs at NJH and actually have info….I will feel much better. ( I have not had discussions with drs about my case yet….I’m in the dark right now. ) Could you all share how you felt when you first found out about having MAC…..and how you manage to smile again? I’m being totally honest with you……..I never smile anymore. It’s very scary to me, the whole thing. Thanks Bon
Replies to "I know I have mentioned “fear” before…but…I’m really struggling with it still. Waiting to hear from..."
Bon,
I'm 78. When I was ten, I heard Psalm 23 and it was so beautiful, I memorized it all.
My brain isn't as good as it was, so I can't recite it all perfectly, but read over it and
see all the beautiful promises in it. About five years ago, I had an insight: It says
"Even though I walk through the valley of the shadow of death, I will fear no evil
for you are with me..." I looked and looked and I couldn't find the part where it
says everything is going to be o.k., we are going to have fun, it's going to be a
piece of cake, etc. It does say that God will be with us.
Our bodies are amazing things and if we give it some help, it will usually fight off
anything. Clean up your diet. Get exercise every day. Take probiotics and prebiotics.
Do things to help your immune system. Get air filters for most of your rooms.
Get rid of clutter. Meditate for xx minutes every day.
Over 100 times in the Bible it says "Be Not Afraid" in one form or another.
Do you believe?
Harry
I too have MAC and I have 3 bacteria growing in my lungs. I too was overtaken with anxiety and fear. After being seen at NJH they relieved a lot of that anxiety. I still have some anxiety but not crippling like it was in the beginning. I was diagnosed 1 1/2 years ago and I’m on the Big three, Arikayce as well as experimental drugs. Mine is showing no signs of going away. What NJH told me was live your life but be cautious and smart about it. None of us are guaranteed tomorrow. So I pray every morning when I wake up to another day. And I am intentional about my time with my family. If you need to talk please reach out and I’m here. I would love to walk through this journey with you. You’re not alone!
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@healthybon
All cases of MAC are not doom and gloom. They don't all need to be treated. I was diagnosed with Bronchiectasis years ago and MAC almost a year ago. I am not being treated because of my age and also because I do not have severe symptoms. I do air treatments with levalbuterol and 3% saline and use my Aerobika and try to stay as positive as I can. Because I can only control this so much. I wish you the best when you see your Pulmonologist and hope you will also have a referral to an Infection Control MD. Think positive and keep busy.