← Return to Spinal steroid injections while on Prednisone

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@sheralee

CRP is always high, but sed rate is pretty normal. Negative for RA, lupus, most cancers, etc. This pain was hanging in my buttock hip area that even pain injection doc questioned if back or pmr. I was in so much pain on methyltrexate! Then the pain added to my shoulder, so now I couldn't lift my arms and legs. Rheumatologist said told you so. I started questioning what was left in life with this pain. I finally asked to be off MTX & he agreed that after 2+ months it wasnt working. I insisted I get something else. So glad to be on adequate dose of prednisone & able to maneuver & find joy. I sure learned we must strongly advocate for ourselves! Reach out any time & good luck on injections!

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Replies to "CRP is always high, but sed rate is pretty normal. Negative for RA, lupus, most cancers,..."

I can see why it was confusing attaining your diagnosis. My sed rate has remained above 80 for two years and crp goes up and down at times it is 25. I tried methotrexate for 4 months and although it did help reduce my pain and I got down to 10.5 mg prednisone, I became sicker and sicker on it and had to quit. When I quit I had a terrible flare of pain and went right back up on prednisone dose to control it. Prednisone has side effects yes, but I have been able to control them pretty well. Thinning skin is most bothersome right now. Glad you have some pain relief on prednisone. I think it takes a lot of patience on the slow path to recovery from PMR. You are right we must advocate for ourselves. I refused taking Lefluomide after trying MTX. I would be unable to do anything without prednisone. I am hoping the spinal injections will allow me to drive again. I have not driven since January and my husband is not well and having a hard time doing all the errands I used to do. I hope things continue to improve for you.