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"Rubbery" Legs?

Neuropathy | Last Active: Jun 1, 2023 | Replies (107)

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@njed

@ray666 - I like your post regarding your "dawning of acceptance", well put!! I went from hardly being able to say the words peripheral...what...to then figuring out how to spell it to where we are today. A lot of resistance at first, oh no....what, how could I have that..... to learning, acceptance and coping. In between, a lot of learning about yourself! I think that dawning of acceptance for me was when I was fitted for my orthotics in 2020. I looked at these and thought this is how it is going to be. But, from that point on, my thinking changed, I became more positive, re-entered PT and said OK, so I can't do everything, let me do what I can and make adjustments as needed along the way but not give in. Remain strong, keep moving and don't forget the cane. 🙂

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Replies to "@ray666 - I like your post regarding your "dawning of acceptance", well put!! I went from..."

Hi, Ed (@njed) There's great wisdom in what you say: "I can't do everything, let me do what I can and make adjustments as needed along the way but not give in." I'll admit it was hard for me (still is, in some ways). I made it extra hard for me because, for most of my adult life, I've made it through each day by running from illusion to illusion –– or, as some might say, from delusion to delusion. I could go into how surviving this way impacted my relational and professional life, but what seems most beneficial here, in this forum, is how living a life of illusion (or delusion) straitjacketed my physical self, making adjusting to now having PN extra difficult. Two ways spring to mind: dancing myself as an outdoorsman, and believing I could perform on stage well into my dotage. PN shattered both those illusions/delusions! Today, I tottered from my car to the front door of the local supermarket; forget about scaling any 14,000' peaks this summer! Three years ago, I quit acting, not because I had to, but because, in my last show, I was spending all of my time "up there" in front of a paying audience not thinking about what my character was doing but only about me and not falling on my face –– more likely on my butt! Life gets to be one subtraction (of something you loved doing) after another. Adjusting to that –– that New Reality –– is an exercise in late-life maturity.