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Paget's disease of the bone and other inflammatory issues

Cancer | Last Active: May 6, 2023 | Replies (22)

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@ess77

@becsbuddy ...You may be right. It's so good to have someone to bounce things off, as I can't discuss my health issues with my son. He doesn't deal with those things at all and I think any reminder of my mortality doesn't help his frame of mind. He's surely concerned for my best, but at the same time very concerned about how he'll survive if he survives me. Legitimate concern..

Oh my. Did I do something I shouldn't have done! I ate 1/2 gal of that darn Moose Tracks yogurt...couldn't stop! It stopped being good halfway through but I didn't feel like getting up and it was melting so I had to keep eating it. Oh, my word, I'm going to be ill most of the day and evening. I feel awful, Becky. I haven't done that, ever. As a young woman I might have eaten a pint if I was depressed or something but to finish off a half gallon...I'm bloated, gas is crazy, nauseous, can't breathe my stomach is so big....Yes, I'm giving you quite a giggle for sure. Enjoy, Never again. UGH!

I think I'll call my rheumatologist Monday to see if his staff thinks I should see him. Good prompt. He handles my sarcoid, vasculitis, and other stuff, so maybe this he'll do also. I had the splenic aneurysm checked last week with a CT scan. Abdomsn looked fine. It hasn't grown and is quite small. So, that's a very good thing. Hope the same for the ascending aortic aneurysm. I have an appt with my heart surgeon in June to ck that fellow. With all that's happened the last year, I don't see how it stayed the same. The stress was enormous and several severe shocks as well, so it may be larger. Hope not. I'm not a candidate for surgery so it just has to be ok on its own. I suppose eating gallons of frozen yogurt isn't especially good for it, though.

I'm hopeful the iron situation gets resolved as I really need some daily improvement in functioning. It's holding me back and I don't like that. Life at 76 is going so fast, I don't want to miss a single day. As it is, I'm staying pretty much inside most days, but want to get busier to complete setting up for my estate sale. I must get this completed before I leave this earth. I will not leave all my things for my son to deal with. He can't. And, I want my home back to enjoy again. So, no more over=eating, and someone has to get this body working better. Soon.

Oh, our Mayo Falcon friends, Hattie, and Orin have 4 eggs they're sitting on now. I began watching again. You know, those falcons kept me together during the worst of the pandemic. I'll never be able to thank them, but I thank Mayo for doing all they've done for the falcon population and allowing me to be a part of it. It's truly wonderful to watch and hear them live their lives each spring.

Be well and be blessed, my friend. Elizabeth

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Replies to "@becsbuddy ...You may be right. It's so good to have someone to bounce things off, as..."

@becsbuddy, @crikee, @colleenyoung, and all...I called this morning to Mayo rheumatology. The staff is setting an appointment with my rheumatologist to check on the wonky bloodwork...
iron TIBC, UIBC, saturation %, transferrin, lower ferritin level, and the skull ridges. It seems I have Paget's Disease re the skull ridges, but the doctor didn't go further than no fractures and referred me to Mayo.

So, I'm hopeful this will lead to a good understanding of these crazy results. As I mentioned, if there's nothing to be done, ok. But, I think there are issues to address and I want my iron levels and usage improved.

Thanks, Becky for the encouragement. You are a great Connect friend. I hope some of my issues help others. I'd love to know more about Paget's but haven't found any good recent information. Suggestions? Information?

Blessings, elizabeth