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Has anyone chosen the Watch and Wait and regretted that choice?

Neuroendocrine Tumors (NETs) | Last Active: May 24, 2023 | Replies (42)
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@augustine777

Hey Frogsong,
They hadn’t heard back from the specialist yet, so they decided not to do any adjuvant therapy. We will see if they hear anything soon.

It seems that sometimes they are saying that they got everything and I should be good to go, and there are times that it seems that we are just waiting for cancer to show up in my liver. I kind of wish we were doing more. I am not sure what therapies they can do when there is no actual tumor.

I am connecting back up with them for a scan in early June. We will see if there is any more information then. I know that there is increased chances of liver metastasis if there is lymph node involvement, but it also depends on whether the tumors are well-differentiated and what grade they are. My KI-67 scores were 8% and 10%. Grade 2 well-differentiated.

Good luck with everything.

Blessings,
Scott

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Replies to "Hey Frogsong, They hadn’t heard back from the specialist yet, so they decided not to do..."
frogsong | @frogsong | Apr 22, 2023

Thanks for the reply Scott.
I too am having a 6 mos post surgery follow up MRI. (Mine is in July.) My tumor was well differentiated, Grade 1, KI67 was 6.7 % and mitotic rate 0.2 (Not sure how I am Grade 1 with my KI67 being 6.7. It must be because of my low Mitotic rate).
I too, feel like they are just waiting for it to show up in my liver or bones or somewhere. I wish there was a proactive treatment available. But as you said, I guess without a tumor to fight, (and with no symptoms in my case)there isn’t much that can be done yet….

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