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Paget's disease of the bone and other inflammatory issues

Cancer | Last Active: May 6, 2023 | Replies (22)

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@ess77

@becsbuddy, I've missed you, too. You have been through so much since we first began our friendship. I feel much the same for you. You've been one to encourage action, and activity even when you were recovering. I hope you're doing much better today and your life is filled with good things.

I'm in a place of questioning at the moment. My PCP is concerned about my iron saturation and iron profile numbers. He doesn't appear concerned about the ridges in my skull, but I wonder why and what and don't like the discomfort they cause. Just don't know where to go for answers. I don't have a Mayo doc overseeing my iron levels other than sleep for RLS only. She doesn't want to move ahead with infusions now based on the Mayo testing in Feb, ferritin at 75. March at Baptist Health Hospital ferritin was 58. April - 60. I'm eating steak, asparagus, and fresh spinach 2-3 times weekly! Salmon at least 2X weekly. Maybe I need to just eat Moose Tracks frozen yogurt every day and be done with it!

Off to enjoy Moose Tracks! Blessings, elizabeth

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Replies to "@becsbuddy, I've missed you, too. You have been through so much since we first began our..."

@ess. I’m wondering if you have seen a rheumatologist. They follow autoimmune diseases. My latest is EPI or exocrine pancreatic insufficiency. It adds 8 giant pills to my daily pharmacy of pills!
Moose Tracks sounds great, but I like Irish Cream Brownie even better!
Take care, Elizabeth, and I hope things settle down for you.
Becky