@colleenyoung, Thank you for your interest. The x-rays showed no fractures, so the doctor is backing off the Paget's. I'm confused a bit. I thought Paget's showed on imaging but not necessarily fractures. He's put it aside. My PCP also sent me to my Mayo docs re the iron profile issues.

Colleen, I have ridges in my skull that weren't there weeks ago. My skull hurts at times, whenever I touch the ridges. The iron profile shows high UIBC, high TIBC, normal iron level, and high transferrin, and blood oxygen is low. All these numbers are on the portals that I've connected so they can all see them. and my ferritin level is 60, down from 78 in Feb. The sleep department only treats RLS with low ferritin levels. She hasn't commented on the drop in test that was done at a different hospital, not Mayo. She won't order iron infusions since the last Mayo test was 78 and that's acceptable. It's now 60, not acceptable.

The PCP told me to contact my Mayo docs to handle these numbers indicating iron deficiency, but my hemoglobin and hematocrit are still ok. He's very concerned that the saturation is 16% . But, he's expecting Mayo docs to handle these issues.

The problem is I don't have Mayo docs who are treating this other than the RLS at sleep. S, I'm stuck. I don't function well day to day, have no energy, have extreme fatigue, etc. More than I usually have. So, I' really don't know what direction to go to get help. If I can just wait and see, ok. But, it doesn't sound like I should.

Perhaps I should contact rheumatology? Hematology? No one at this point?
Thanks again. I understand you don't advise but I do need some direction. The skull is a conundrum to me. Skull ridges aren't normal, so I do have that among my concerns.

Oh well. There you go....Thanks, again. Blessings, Elizabeth.