← Return to Anyone Found Help/Explanation for Long Covid Neurological Symptoms?

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@dawnmw

Yes! I had COVID November 2021 with double pneumonia in hospital for 4 days, missed almost a full month of work. My systems started in the hospital with calf swelling, major fullness/pressure I brought it up and they told me it was from all the fluids they were giving me. After I was sent home it continued, I thought it might go away after a few days, it did not. Every follow-up doctor visit I kept asking about it. I had so much discomfort in my legs. They just told me it was from the inflammation. I then started to get sharp stabbing pains in my legs all over, it would take my breath away sometimes. Then I got throbbing, All this continues today, everyday. My feet will turn a reddish/purple and my veins will enlarge, this is when the throbbing is at its worse. I have weakness in my legs from the numbness that I have 24/7. Doctors just say, they don't know all the effects of long-covid. I cant seem to find anyone no help.

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Replies to "Yes! I had COVID November 2021 with double pneumonia in hospital for 4 days, missed almost..."

Hi @dawnmw and others in group. I was not hospitalized but ER doctors and PCP basically told me same thing. Feel my past experience running multi physician specialty practices over 20 yrs., need to share perspective and please dont give up and use helpful info from this site to find healing info specific to you. -Took pick of my lower legs and feet yesterday to prove year later still issue. Also had rare 1 inch round inverted bumps throughout my body which even caused difficulties breathing on neck, could not get appt for months when nothing present and told call for appt when reappear? Still laying in bed typing this after taking almost 3 hrs meditating/breathing exercises due to nightly covid created apnea episodes of over 20 hr. /O2 in 80’s, finally verified by sleep study thru post covid doctor year later ( only one visit allowed with them in my healthcare system) , yet still cant get physical assistance ordering/transportation to obtain respiratory therapist supported oCPAP(most insurances do not cover even with dme benefit), months later. Yes even used professional sources thru social work/local county and state to no avail. Worse, yesterday after over year no ability to work/no income creating no heat in house with high 55 for over a month that Pcp states need to get heat for exacerbating symptoms?, Social Security Disability/Health Human Serv rep stated I could just complete paperwork in remainder of 24 day period allowed-week to receive it, week to try to fill out few lines, few days to be well enough again to make call requiring oxygen to prevent crash after, to be told family member/friend etc can assist in remaining few days and not the over phone completion promised by local office months prior? ☹️, No notes available/read by rep ? And the sad audacity to assume everyone has help, is lessen every person in capacity to be making these life affecting decisions should have at home in person experience with the disabled ,or heaven forbid, have gone thru something like this themselves as so many on these support sites have no help. This journey has proven to me how broken healthcare is, needs pivot to truly enable appts at time of symptom/issue with providers who are given/required/verified training of debilitating symptom info as we are all sharing the truth of things previously perceived doubtful. Yes, took couple of hours to type this and I will pay dearly but our stories need to be heard to hopefully help all! Healing journeys to all🌈

Have you seen a neurologist? The weakness and numbness in your legs could be motor nerve damage. The red feet could be due to small fiber peripheral neuropathy, which many neurologists outside of major academic medical centers have trouble diagnosing.