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New DIPNECH diagnosis, need advice on doctors

Neuroendocrine Tumors (NETs) | Last Active: Nov 17 7:33am | Replies (39)
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@hopeful33250

Hello @tlf56831 and welcome to Mayo Clinic Connect. There is another NET member, @davisnrn, who has used Everolimus. I hope that she will share with you.

What other treatments have you had? How are you feeling?

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Replies to "Hello @tlf56831 and welcome to Mayo Clinic Connect. There is another NET member, @davisnrn, who has..."
tlf56831 | @tlf56831 | Apr 23, 2023

I’m feeling great! Have not started Everolimus yet. But soon. I have had the Lutathera treatment, monthly Sandostatin injection, bland embolism.

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