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New DIPNECH diagnosis, need advice on doctors

Neuroendocrine Tumors (NETs) | Last Active: Nov 17 7:33am | Replies (39)
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@tlf56831

I have neuroendocrine cancer that had metastasized to my liver when diagnosed. I have had this disease for 3 years now. Because of progression my Doctor want to start me o. Everolimus has anyone taken this medication and what do you think?

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Replies to "I have neuroendocrine cancer that had metastasized to my liver when diagnosed. I have had this..."
Teresa, Volunteer Mentor | @hopeful33250 | Apr 21, 2023

Hello @tlf56831 and welcome to Mayo Clinic Connect. There is another NET member, @davisnrn, who has used Everolimus. I hope that she will share with you.

What other treatments have you had? How are you feeling?

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splendrous | @splendrous | Nov 11 12:58pm

I am recently diagnosed with metastatic neuroendocrine tumors in my liver. No know origin. Grade 2 with 6-8% KI-67 index. When you were diagnosed in 2020 was there any discussion of treatment? Maybe your tumor was grade 1 with low KI-67. I am deciding whether to watch and wait or start a treatment. Thanks for sharing.

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