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Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Brain Tumor | Last Active: 1 day ago | Replies (515)
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@colleenyoung

Hi @mmm, welcome to Mayo Clinic Connect. I'm a little late too. I'm really glad you found this group and shared your experience. New people come to the forum everyday and hearing stories like your helps.

I'd also like to invite @sarasally2 @ruby1west @janoh @vickid117 @rosesareredmylove2016 and @kimb61 back into this discussion. @ellene also has NF2.

MMM how often are you monitored? Are you still taking part in the NIH study? How are you managing the balance issues?

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Replies to "Hi @mmm, welcome to Mayo Clinic Connect. I'm a little late too. I'm really glad you..."
sarasally2 | @sarasally2 | Apr 22, 2020

I was on a wait and see but unfortunately it doubled in size this year and with the covid 19 thing I can't do the gamma knife right now. I try to work on the balance thing everyday at home. I haven't left the house since the first of March when I went to Duke. Anxiety levels are high.

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