It looks like I am late to the party in joining connect. If, however, anyone is still following this discussion, I wanted to contribute my experience. I had two small acoustic neuromas diagnosed in 2006. Both were treated with gamma knife surgery to preserve excellent hearing. In 2013 a spinal tumor was removed surgically and the neurosurgeon told me I had several “nuisance” tumors (tiny and likely not to present major problems, as they are slow growing.) for five years, I participated in an NIH study which merely monitored the growth and development of symptoms. No interventions were factored into the study. Fourteen years since the gamma knife surgery, my hearing is still in tact, although recently I’ve experienced increased balance problems. Every day is a gift. My father, two uncles, aunt, two sisters, three cousins and their daughter all had or presently have NF2.

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