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Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Brain Tumor | Last Active: Dec 20, 2022 | Replies (488)
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@sarasally2

I was diagnosed with an acoustic neuroma last year and was on a wait and see, this year it doubled in size and ma scheduled to discuss options with doc for radiation or surgery, ENT surgeon refuses to do surgery so I have decisions to make and feel left hanging in the air. Anyone have radiation?

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Replies to "I was diagnosed with an acoustic neuroma last year and was on a wait and see,..."
annedodrill44 | @annedodrill44 | Apr 8, 2020

I was diagnosed with left acoustic neuroma 9 years ago. I had gamma knife surgery at Mayo Clinic in Rochester MN 3 months later. This past Dec. I lost about 60% of my hearing in that ear all of a sudden.
As part of my treatment I have been followed in Rochester every year, then every 2 years, with follow up MRI’s and exams. They tell me I was lucky I didn’t lose my hearing sooner. Currently having some headache, tinnitus and vertigo issues. Will be looking into hearing aid for left side soon and possible cochlear implant. I can’t say enough good things about care at Mayo, MN. Putting off treatment does not sound wise to me.

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