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Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Brain Tumor | Last Active: Dec 20, 2022 | Replies (488)
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@sarasally2

I have spent too much time doing the wait and see, can't leave the house because the dizziness is so bad, no more driving, muffled hearing, gaps in memory,etc all garbled up with migraines/vertigo. I feel like a circus show because the docs have only read about this and never have seen a patient. I think I am going to try to get to a Mayo clinic and see what they have to say.

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ellene | @ellene | Oct 1, 2019

I am so sorry that you are dealing with such horrible symptoms. If it were me, I would most definitely get to Mayo or at least to a doctor who has some expertise in these types of tumors as soon as possible. One of the hardest things we have to do when we are sick is advocate for ourselves. We have to be strong and fearless in the face of crippling symptoms and doctors who are supposed to know more than what we know. Another resource, if you haven't already been in touch, is the Acoustic Neuroma Association. They might offer some support. I will be wishing you the best.

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