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CAR-T Cell Therapy: Introduce yourself and connect with others
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 9 9:21am | Replies (224)Comment receiving replies
Much appreciation for your concern and sharing of your experiences. I am convinced that the CAR T information in the public domain has been strained through the legal department due to liability issues. I am blessed with a wonderful wife who is in my corner along with an attorney friend and the prayers of my Presbyterian cohorts. I am an elder in the church and former moderator of this Presbytery. This is scary. I am disappointed in the cancer center here, as I was presuming they are “full service”. They are, up to a point. I am strongly leaning toward Mayo even though it is a 10 hour drive. It’s worth it to be attended to by someone I trust.
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You are welcome @elwooodsdad , I am so glad to hear you have a solid support system, this is very beneficial to as we meander through life. I can't speak to what is accurate online with various information that is out there, however, a reputable health care provider will have accurate information for you once you are ready to take those steps. One has to keep in mind that Car T is still a relatively new treatment and likely requires some very specific specialties to support a program such as that and as such not all providers can offer this therapy. I am sure you will be provided with accurate information regardless of which health provider you may choose.
Do you know how far in the future you may have to consider this type of treatment?