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CAR-T Cell Therapy: Introduce yourself and connect with others
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 6 days ago | Replies (224)Comment receiving replies
Hello @elwooodsdad I can understand the fact that you are scared, news that procedures are not progressing as planned changes how we feel, fear is certainly one of them for many of us. In my journey, I found that Car T side effects were somewhat different for everyone I encountered that had the therapy. This is really not a lot different than many other treatments as even chemotherapy does not work for some, but yet saves many thousands of lives every year. It is important also to note that the published side effects are a possibility but may not necessarily occur.
Making health care decisions can be a trying experience at times, do you have someone that can aide and support you in those?
Replies to "Hello @elwooodsdad I can understand the fact that you are scared, news that procedures are not..."
Bob,
Meant to ask yesterday, can you share where your CAR T therapy was done?
Blessings,
Bruce
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Much appreciation for your concern and sharing of your experiences. I am convinced that the CAR T information in the public domain has been strained through the legal department due to liability issues. I am blessed with a wonderful wife who is in my corner along with an attorney friend and the prayers of my Presbyterian cohorts. I am an elder in the church and former moderator of this Presbytery. This is scary. I am disappointed in the cancer center here, as I was presuming they are “full service”. They are, up to a point. I am strongly leaning toward Mayo even though it is a 10 hour drive. It’s worth it to be attended to by someone I trust.