I’m sorry to hear how much pain mark and others have endured and how many doctors and tests and supplements and/ or drugs tried but no solution. My 36 year old son’s journey began when his gut he had what can only be called a kind of gastritis 3 years ago. Developed severe constipation, severe bloat and trapped gas, severe rapid stomach emptying, developed full blown colonic inertia confirmed after 2 years and many more expensive tests by swallowing a little pill with radioactive markers and series of X-rays over 5 days to see thst the markers never left the transcolon. ( can’t remember the name?) Many tests and gastro drs told he him either sorry I don’t know or you have “ hypersensitivity” or have plevic floor dysfunction function. We haven’t given up but dealing piecemeal with various symptoms. Now trying ozempic because it slows stomach emptying ( early to be sure but definitely helping) and early morning and low does nortriptyline (10 mg then a few weeks later went to 20 mg) - minimal help but I have read very good reports so easy to do. and worth a try.
From what I can see, having these terrible gut problems and symptoms for years really makes it extremely difficult to exercise, enjoy a day, have anything like a normal life. We are not giving up but I am very disappointed with gastro drs who shrug shoulders and/ or tell him it’s in his head , you can live to be 90 like this so essentially get over it and get on with your life.
I’m disappointed with Mayo - we went to the facility at Jacksonville after year 1 of symptoms and told IBS, hypersensitivity, took a test for suspected gastro pareses and surprised to see rapid stomach emptying but no real recommendation to deal with it. I will end this by saying that there is so much disjointed and poor communication in the gastro world thst we are left trying to figure it out ourselves. Don’t give up and I hope for all of us that we have loving family to support our efforts and validate thst it is not in your head. A positive attitude just doesn’t make it tolerable let along fox the problem.